Shining a light on Nephrotic Syndrome

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

Explore

What is Nephrotic Syndrome?

So that we’re all on the same page, let’s start by explaining exactly what Nephrotic Syndrome is and how it affects your body.

What is NS

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Support

Sticking together is what NeST is all about. We want to unite people with NS and help them help each other through the good times and more challenging ones.

Support Groups

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Welcome to NeST, we care because we understand

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you gain everything you need to know about Nephrotic Syndrome.

Who We Are

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Fundraising

Every fundraising activity actively helps us invest more into our research to one day discover a cure for Nephrotic Syndrome.

Get Involved

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It’s all about give and take

Give a little or a lot to NeST and take away that wonderful feeling of having helped us reach our end goal: to discover a cure for Nephrotic Syndrome.

Donate

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13 Apr, 2024

National Information Day for those living with Nephrotic Syndrome which is taking place on Friday the 26th of April 2024. Registration(10 -10.30 am)

A Very Big Thankyou from NeST & the Bristol Research team to 'Purespring Therapeutics' in London for kindly holding a bake sale and raising the AMAZING sum of £353.80 for Nephrotic Syndrome Research to mark 'World Kidney Day'!!! Wow!!

Download our charity fundraising pack

Let’s strive to beat nephrotic syndrome together and get everyone involved. The more we spread the message, the more we can raise the condition’s profile, invest more money into research and one day say we’ve found a cure.

Information Pack

About Us

Community Support

Why NeST?

At NeST, we care because we understand. Our founders have the perfect balance of expertise and empathy and they know just how challenging it can be living with the condition yourself or caring for a child who has it.