NeST Charity Calendars

[SteveC]

Hi All,

The formation / production of the calendars is gathering pace. We have decided to get 200 printed, if anyone thinks they can get sponsorship to cover the printing cost that would be brilliant as then the trust will get 100% of the proceeds, if you can, then please email steve@nstrust.co.uk so we can sort out details.

Also we would like people to send in photos that they think would be suitable for the calendar, please bear in mind that we will all be trying to sell to some people that may not know about the condition or the trust (so they need to be sellable).

The photos need to be of a certain composition, they need to be jpg format, 300 dpi or above and 20cm x 20cm. I would also ask that you suggest what month(s) you think the photos are best suited to help us in choosing those for inclusion.

Please send them to steve@nstrust.co.uk by the end of August so that we may get the calendars out for you all to start selling in September.

Steve

[Ashleighsmum]

Hi,
I would be happy to try and sell calendars, i would probably only be able to do about 10 though, if thats any good?

Im thinking of doing a swimathon or somethin to help raise money, how do i go about sending the money raised? Do i just use the justgving website? Im new to this but really want to help,

My daugher Ashleigh was diagnosed with NS at 13 months, shes now 5 and hasnt responded to any mediation, we were told last year she has FSGS so really just waiting for her kidneys to fail, her dad had the same condition and he had a transplant when he was 10 and is stil in great health, i am lucky as i have them to talk t about the condition, they did alot of fundraising for him, the set up their own charity for him at the time.

This is a great charity and it would be amazing that if in time a cure could be found.

All the best,
Tanya

[wendycook]

Hi Tanya,

Really sorry to hear about your daughter Ashleigh not responding to any medication. My David was the same,only some medication delayed the inevitable. Our children have a tough time keeping well don't they? Glad to read you have good support from your family. My David aged thirteen now has had FSGS since he was five,he still keeps positive and manages school more or less full time. If David can keep positive so can I , hopefully that feeds back to the rest of the family but of course sometimes it's pretty tough on everyone when there is long hospital stays and plans put onhold if they are not well. This is why I feel as a parent we must work together as a team with doctors and school to make the best of their opportunities. This is why I am actively involved in Nest to help the research team at Bristol to find a more succesful treatment /cure for our children. The team have made great strides in their research and I know it's going to take time and we have to be patient, but I'm sure one day there will a successful therapy, so don't give up hope - keep up the fight Tanya!

That's wonderful you are willing to find time and energy to fundraise -thankyou very much. Using the justgiving is a good and convienient way to fundraise(justgiving team will help set it up for you), but don't feel you have to do it this way. If you like you can collect cash, then send in cheque made payable to 'Nephrotic Syndrome Trust' or 'Nest' to the following address : -Professor Moin Saleem
NeST - Nephrotic Syndrome Trust
The Children's Renal Unit
Bristol Royal Hospital for Children
King David Building, Room 101
Upper Maudlin Street
Bristol BS2 8BJ

Tanya I can send you some leaflets and the latest article wrote by Professor Saleem from NKF 'Kidney Life' (September Edition). Also, I can supply balloons now and T-shirts at £8 for small and £12 for small (size 10/medium/large & Extra Large). Collection boxes for larger events will be on offer soon! Please send me an email wendy@nstrust.co.uk or reply here. We hope also in the near future to have some home collection boxes on offer.
Also to let you know I'm in contact with other NS patient organizations and we have formed recently ourselves as 'Nephcure International' to support research seeking the cause Idiopathic Nephrotic Syndrome,improve treatment and find a cure. Website hosted on Nephcure Foundation site -
www.nephcure-international.org

My thoughts and prayers are with you and Ashleigh and family,

Best Wishes

Wendy

[SteveC]

Hi All,

The NeST 2010 Calendars are now available!!! Yahoo!! As you will know we decided to get 200 printed, so we now need to sell them and add to a great year of fundraising.

Now even with my basic maths if we can get either 20 people to sell 10 each or 10 people to sell 20 each then we will clear what we have had printed, so if you think you can sell 20,great, if you can only do 10, then still great, what ever you could sell would be great, but if we can sell them all it would be better.

Some of you have already posted on the forum saying that you would be willing to sell some, so rest assured, those of you that have already offered I will contact you to check that your still up for the challenge and how many you require, and also your details.

For those of you that have not come forward yet then please contact me either by private message from the site, or by email to steve@nstrust.co.uk so we can sort out details.


Steve

[Ashleighsmum]

hi there
i have already replied but again, im happy to sell some calendars, i do only think i could do about 10, but hapy to try selling the 20. Let me know what i can do to help

all the best,
tanya xxx

[SteveC]

Hi Everyone,

Just to let those of you that have kindly offered to sell some calendars that I have now emailed you directly to ask for your details so we can arrange for delivery to you.

If anybody else feels that they could / would like to sell some calendars then please email me at steve@nstrust.co.uk, or private message me with your details and how many you can sell and we will arrange to deliver them to you.

Please remember that the Trust has had 200 printed and if we can sell them all then we stand to make £550 after costs.

Kind Regards

Steve

[Ellen]

Steve

I received the 15 calendars. for how much would you suggest to sell them?

Ellen van Loevezijn

[SteveC]

Hi Everyone,

Sorry I thought somewhere along the line I had said that the calendars are to be sold for £5 each. Thank you for bringing it to my attention.

Cheers

Steve

[SteveC]

Hi Everyone,

Thanks to everyone that is selling the Calendars, your doing a sterling job. I know I'm pushing it, but if anyone wants anymore then please do not hesitate to contact either Sharon or myself and we can arrange for some to be sent. Even if you only want one for yourself the please contact us and we can arrange to post one to you for £5 + £1 to cover P & P.

Kind Regards

Steve