The
Nephrotic Syndrome Trust, or NeST, was set up in 2005 by trustee
David Yearsley whose son James sufferers from the disease.
Nephrotic Syndrome affects around 10,000 people in the UK. Doctors do not fully
understand the cause and there is currently no known cure. But a dedicated team at the specialist
Kidney Unit at Bristol Children's hospital is researching the disorder in hope of
finding a cure.
This research work is funded solely by charitable donations and grants and has to
proceed on a project-by-project basis. It was for this reason that a dedicated charity
has been set up to raise money to fund this vital research.
The
Trust aims to:
- Raise awareness of the disease
- Raise funds for research to find a cure
- Offer a website resource and forum for sufferers and their carers who often feel isolated
NeST
is supported by the world-renowned rugby player Jonah
Lomu, himself a sufferer of NS who has agreed to be an Ambassador for
the charity.
Our NSTrust Community Bulletin Board is now up and running and you can read and post messages relating to Nephrotic Syndrome and NeST.
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