Dr Saleem to take on the Granfondo Sportful Bike Ride

Photo of bikes in the Dolomites

Open Garden at Cookridge

Garden Photo

The gardens are at 4A Blackwood Rise, Cookridge, LS16 7BG, which is off of Tinshill Lane. The admission is £2.00 with children free, there will also be refreshments available, (Tea, Coffee and Home Baked Cakes). As well as the refreshments there will also be plants for sale. Our special thanks again to Carol and Michael for their wonderful efforts in raising money for NeST.

Superhero Help for Millie

Millie Fun Run
The whole day was a great success, with an amazing sum in excess of £2000 being raised for NeST.

Philip's Marathon Pledge

Emma and Philip Photo

Ashley's Marathon Pledge

Ashley Burt photo

NeST LogoAshley Burt is a member of a small group of runners in Chineham, and also a friend of Philip Branigan, and he too has joined the growing number of marathon runners that are pledging their support to NeST. When Philip told Ashley about his niece, Emma, and that he was raising money for NeST Ashley also decided to pledge to raise money for NeST through 2010.

Bailey's Bandz

NeST LogoBailey has suffered with NS since he was five, and because of this, he wanted to try and raise money and awareness for NeST. To do this, he arranged a Childrens Sponsored Walk at Biggleswade Park in Bedfordshire on the 22nd of August 2009.

Bailey and his family wanted to try and raise further funds for NeST, and to raise the awareness of Childhood Nephrotic Syndrome. To do this they had the idea of producing 'Baileys Bandz'.

Lyndon's Half Marathon

NeST LogoLyndon Gough is in training to run the Plymouth Half Marathon on the 30th May 2010.

Lyndon was so moved after meeting Joseph and his mum Christine Stacey that it gave him the incentive to raise money for NeST to help fund research into finding a cure for the condition.

If you would like to show your support for Lyndon then please visit his fundraising page and donate - just go to www.justgiving.com/Lyndon-Gough.

Bradshaw's Books & Biscuits

NeST LogoNicola Bradshaw is the godmother of NS sufferer Dylon. Nicola who is Managing Director of PC-Remedies, who are based in Watford wanted to help raise funds for NeST.

David's Sprint Triathlon

Swimmers Photo

NeST LogoDavid Yearsley, our founder, has bravely entered himself for the Stratford-upon-Avon Sprint Triathlon. Along with two other colleagues from BRITA, David will be raising money for NeST and also our BRITA's chosen charity

The Triathlon takes place on 9th May 2010 and will comprise of a 400 metres swim followed by 24km bike ride and finishing with a 5km run.

Juhi and Lily's Scooterthon

Juhi Photo

Nottingham Half-Marathon Success

Andrew Tweedale, father of ten year old daughter Robyn who suffers from NS, has successfully completed the Half-Marathon run in Nottingham on 13th September 2009.

Andrew has raised the wonderful sum of £275 and if anyone would like to give further donations - he would be delighted - just go to www.justgiving.com/Andrew-Tweedale.

Andrew tells me he will bravely enter more fundraising marathons soon, so please watch this space!

Thank you Andrew and God Bless those beautiful trainers! (see link everyone).

Emma's Sponsored Walk

Emma Photo

NeST LogoEmma is 13 and has recently been diagnosed with suffering from Nephrotic Syndrome (FSGS). But instead of letting the condition get to her, she is doing all she can to raise awareness and funding to helping find a cure.

Along with her family and friends she completed a sponsored walk of about 6 miles around the small town of Tadley in Hampshire on Saturday 26th September 2009. Emma was so happy to have completed the distance and in doing so has now (27th March 2010) raised a truly amazing £20,271.

As Emma has now surpassed her previous target of £20,000, she has set herself a new target of £25,000. She has lots more fundraising events planned for the forthcoming months, so I'm sure she will achieve this target again!

London to Southend Bike Ride

Police Cycle Photo

NeST LogoMathieu Merenda and two of his police colleagues from the City of London Squad have raised an amazing £1,2500 so far after completing the London to Southend Bike Ride for NeST on 19 July 2009 in an impressive 4 hours. Mathieu, whose three year old son, Reece suffers from NS, and his two colleagues can be seen with their bikes.

Parachute Jump for Lauren

NeST LogoMike Fuller and his friend Neil Beaver will be raising money to help fund the research into NS by linking their fundraising activities.

Mike will be parachuting (brave man!), on Friday 28th August at around 5pm, (God & weather permitting) over the Langar Airfield, in Langer. Should you wish to witness the jump, the address is Langar Airfield, Harby road, Langar, NG13 9HY.

To coincide with Mike's sterling effort, his friend Neil will be cycling from his home to the airfield and then back home with the journey covering around 50 miles. Neil’s employers, Halfords in Derby, are giving him their full support in his effort.

We wish both men well and fair weather and the best of luck in these challenging events.

More Teresa De Roberto

Teresa Photo

NeST LogoAfter the success of our Teresa De Roberto concert in October 2008 (see below), Teresa kindly agreed to do another concert on Saturday 26th September 2009. The evening was again a great success, with Teresa called upon to do an encore.

Open Garden at Cookridge

Garden Photo

Marathon Efforts for NeST

Marathon photo

NeST LogoColin Chapman and his colleagues Sarah and Ben successfully ran the Silverstone half marathon on 16th March 2009 and raised £186 for NeST.

Sarah then went on bravely a few weeks later to successfully complete the London Marathon, cheered and supported enormously by her family who literally followed the circuit; also witnessing her triumphant finish accompanied with tears of relief and joy. Sarah said it was a fantastic experience even the it was too hot for the event, but hopes to do a repeat performance next year hopefully for NeST.

Marathon photo

The total raised from both marathons was a staggering £2054.50. Congratulations and Well Done! Lots of thanks to all involved (Sarah says if anybody would like any tips for doing a marathon she would be very happy to advise).

Barn Dance at Bicknor

Harvey at Bicknor

NeST LogoThe Barn Dance held on 18th October 2008 at Bicknor Village Hall in Gloucestershire raised over £300 for Nephrotic Syndrome research through NeST. The event was organised by Lisa Smith whose son, Harvey, was diagnosed with Nephrotic Syndrome in June 2008. Harvey can be seen here holding the collecting bucket along with his cousins Kayla and Aaron. Many thanks to Lisa and to all who helped make this event a success.

Teresa De Roberto Concert

Teresa De Roberto Concert

NeST LogoThe Charity Concert featuring up and coming young star Teresa De Roberto on 25th October 2008 was truly a night to treasure. Teresa has the most incredible voice and she had a standing ovation that evening.

We raised the fabulous sum of £1,135 which will be split between Metabolic & NS research.

A big thankyou to Teresa and to her mum Lily and friends who worked extremely hard preparing and cooking the buffet.  Many thanks also go to Tony Ferrari who generously paid for the buffet and refreshments.

Fashion 4 Life

Fashion 4 Life flyer

'Bugfest SW' Festival Donates to NeST

Bugfest SW photo

NeST LogoBugfest South West is an entomological show which exhibits and sells invertebrates (creepy crawlies) and arachnids (spiders) from all over the world.

The first Bugfest SW was held on 23rd February 2008 and attracted 967 visitors to Holy Trinity Church in Yeovil. A generous donation was made to NeST.

March 2008 Jumble Sale and Coffee Morning

NeST LogoA Jumble Sale and Coffee Morning was held at South Street Baptist Church, Yeovil on Saturday 22nd March 2008.

All proceeds from the sale went directly to NeST for research into Nephrotic Syndrome and over £160 was raised. Many thanks to all involved.

Haskins Calendar Pics

Haskins Calendar 2008

Go to www.haskinsfurniture.co.uk - Haskins Furniture - Shepton Mallet and Online

NeST LogoEach year, the staff of Haskins Furniture in Shepton Mallet take part in a competition to choose the photographs for their company calendar. As you can see from the picture on the right, they have captured a brilliant selection of photographs for the 2008 one.

Photo of Choir

Pictured in the photo above of the jumbo cheque being presented are: a member of the Renal Unit Nursing staff, William Catchpool (5) who suffers from NS, his mum Sharon, Julie Levett (Haskins Marketing Executive, another member of the nursing staff, Evalina Catchpool (8) and Dr Moin Saleem who leads the research team at Bristol.

Music in Yeovil - December 2007

Photo of Choir

NeST LogoBy popular demand, the excellent "Music in Yeovil" show was repeated this year. Despite quite a few poeple in the area being hit by illness, a last minute call for troops was well supported and the show went on!

It was fabulous evening. The choir, accompanied by Becci, sang beautifully and St Michael Singers were delightful. Ros captivated us all again with her incredible voice and sang a lovely piece of opera called 'A Weeping' in Italian - very moving indeed.

Our thanks go to all who supported us and in particular to those who came in at short notice. Over £700 was raised after costs were deducted - a brilliant outcome.

Bounce-a-thon

Photo of bouncy castle

NeST LogoSt Mary’s Pre-school held a bounce-a-thon at Holy Trinity Church Hall in Yeovil on 20 June 2007 and raised the fantastic sum of £580 for NeST. Emily Martin, presenting the cheque to Wendy, was one of nearly 30 children who took part in the event.

Photo of Emily presenting cheque

Dr Saleem cycles over the Pyrenees for NeST

Photo of bikes in Pyrenees snow

NeST LogoDr Moin Saleem and friend Philip Shoebridge from Bristol took part in the gruelling Etape du Tour - the amateurs' stage of the Tour de France. This was to raise money for research into Nephrotic Syndrome at the Children's Renal Unit at Bristol Royal Hospital for Children. And of course Dr Saleem knows only too well how important funding is for this research as he leads the research team at Bristol!

The ride took place on 16th July 2007 (it was very hot) and it involved 125 miles with a total ascent of 4,000 metres over 5 mountains.

Colin Chapman cycling to Southmead

Southmead cycle team

Colin was joined on the ride by his brother Pete and friends Brian, Gary, Gavin and Steve and they can be seen here in the photo with Chloe after the ride (left to right, Pete, Brian, Colin, Steve, Gary and Gavin).

David Yearsley raises £10,000 through Four Nation's Cycle Challenge

Photo of cheque presentation

NeST LogoDavid Yearsley (founder of NeST) is seen in this photo presenting Dr Moin Saleem with a cheque for £10,000 at the Children's Renal Unit at Bristol Royal Hospital for Children in September 2006. The money was raised through David taking part in 'The Four Nation's Cycle Challenge'.

David was one of a team of three who set off on 15th June 2005 from the Murray field Rugby Stadium in Edinburgh and cycled to Lansdown Road in Dublin, then on to the Milennum Stadium in Cardiff and finally ending their journey 10 days later at the home of English Rugby, Twickenham - a total of 600 miles.

This cycle challenge was done to help launch NeST and Jonah Lomu's comeback to rugby after his successful kidney transplant. It also highlights Jonah's involvement as an ambassador for NeST through being a sufferer himself.

Many thanks indeed to all the sponsors and individuals who supported this event and of course to David and the team who did so well in cycling such a great distance.

Land's End to John O'Groats Cycle

Photo of Tri UK team

NeST Logo Dr Adrian Bridge, Chris Mills and Mark Mills took part in the Land's End to John O'Groats sponsored cycle ride and raised over £1266 for NeST.

Dr Bridge has a son in David Cook's class at school.

NeST T-Shirts

Scottish Evening

NeST LogoOur Scottish Evening fundraising event, complete with bagpipes, haggis, scottish supper and dancing took place at Holy Trinity Church and Community Centre, Lysander Road, Yeovil, Somerset on Saturday 30th September 2006. It was a great evening of fun and laughs for all - and on the more serious side, £420 was raised for research into Nephrotic Syndrome.

Many thanks to all who helped make this possible and in particular, to Loders Butchers and Milstead & Langdon Solicitors for their generous support.

Bygone Bedford Bits 35th Anniversary

Photo of Norman Aish

NeST LogoNorman Aish runs 'Bygone Bedford Bits' providing Bedford spares for classic vehicles worldwide.

Many have responded with gifts totalling over £5,000 so far - a big well done and thanks to Norman and all who have contributed.

The little Bedford bus in the photo was used for schools work by Dorset County Council. Norman (seen here with the bus) has owned it since the 1960s. Norman can be contacted on 01202 745117 should you ever need any of those bygone Bedford bits.

Great North Run 1st October 2006

Photo of Stefan Wisniewski

NeST LogoWhen Stefan Wisniewski was only two years old, he was diagnosed with Nephrotic Syndrome. Following rigorous treatment by Dr Bell at the Horton hospital in Banbury, he appears to be completely cured.

On the 1st October 2006, Stefan took part in the Great North Run in Newcastle where he is currently studying at the university. Stefan writes "The run went very well, it was an amazing buzz waiting at the start line (actually a far distant back from the start line). The atmosphere was electric and everyone seemed very happy to be there, it really felt like we were all part of something very special. As it was the first time I'd ever done anything like this I really didn't know what to expect, but enjoyed every second and I'm so glad I did it. The support from the crowds was overwhelming and I felt very proud to be wearing the NSTrust t-shirt and hope the money raised will make a difference, if only a small one. I also intent on running next year".

We hope to have more information and photographs soon. Well done Stefan and many thanks.

Risk Stop Limited

Risk STOP logo

NeST LogoRiskSTOP Limited, founded in 2001, has already been recognised as one of the leading risk management companies in the UK. It has recently been awarded the Queen's Award for innovation for its groundbreak risk management solutions. It works as an independent consultant to many of the UK's biggest insurers.

RiskSTOP Limited sponsor our printing costs for NeST leaflets.

You can help too!

NeST LogoMost of us involved will usually be very stretched emotionally and economically. In the time we have available, it is good to get other people involved. You will often need to make it happen and encourage others - even if you do not do things yourself!

Some ideas

NeST LogoHere are a few ideas that have worked in the past so they are worth trying again:

Endless Possibilities

NeST LogoThe possibilities are endless but you need to ask and encourage others. If we do not do this who will?